SUGGESTION: Have Notes Public for Epileptics in case of emergency??

Vonnae
This is a suggestion for the Discord server to help those with medical issues but can also be used for those without medical issues. I noticed that on my Discord profile I am able to add a note for myself but my friends cannot see the note. I have epilepsy and there have been moments where I have a seizure while on Discord and my online friends have no idea what to do. My suggestion was to make it so that my profile note is public to friends or public in general in case of emergencies. Should my seizure last more than 5mins or I have repeated episodes, emergency services are required. This would allow me to get help should I ever have a long lasting episode. I had an episode the other night and my friends were worried and had no idea how to help other than wait it out. I had this suggestion with the intention of having online friends being able to call medical assistance for myself, and possibly others, who have epilepsy should we have a seizure lasting more than 5 mins or repetitive seizures. I want to know if my idea has any weight or value for your team to develop something for "in case of emergency" methods should this happen to myself or someone else with epilepsy.
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Comments

8 comments

Date Votes
  • nucleargrass

    I think this would be an extremely valuable feature

    4
  • Cultrip

    I feel this would be a very helpful feature for lots of situations

    2
  • Good Boy

    This is an amazing idea and could be very helpful to a lot of users

    3
  • Gedwyn

    this is always something ive thought should have been part of any service with live interaction as a JUST IN CASE scenario all the way back when skype was first a thing

    2
  • G.

    Really useful! I think having a profile card in general could help with names and other key items too!

    2
  • ruben | SMLE

    Necessary!!

    1
  • Smugtactular

    Always good to have a panic button installed for situations such as this. Little integrations can save precious lives.

    1
  • pinky23

    Thank you for bringing up this to light.

    I'm still very new to Discord and earlier today was banned(?) for asking to take a few hours off to sleep before finishing the "introduction to myself" questions to a discord site here. I had early in the day met many of the members on a live drawing app and they were very kind, funny and lovley people. Sadly, non of them were the 2 mods I contacted me for the hour (might be hyperbole or not, for by TLE seizure activity has been ...hard to live with... and I  could hardly function during this time.)  I found the list problematic for a number of reasons,most likely the severity of my inability to move and think properly , aggravated also by ongoing covid/cfs/me illness still running rampant in me, was party to over an hour an hour of stop-starts (though, this should not matter, no? Not tested). LONG STORY SHORT; After I had hit the return key 2x in between questions posited, I was told this was I was spamming. I apologized and asked(begged, like the usual when embarrassed over my epilepsy) and asked to be sleep and answer in the morning. No replies, just wait list.... and then my entire user or whatever they are on this ableist site, when light grey.

     

    A real sorry to you all for basically just hijacking your eye to vent. It has been hour and I am almost back to normal. Back then, it was so very obvious that there was somethings wrong. Would it have been so wrong to just ask? The last I had a large scale seizure, People whipped out phones and recorded me I need to stop looking for the white elephant - humans will always be inhumane first.I hope my inability today to hide my last few decades me you al have had beautiful one with not even a snag in a shirt. Be well, Be happy and thank you for reading (and telling me where/what I should I should do, if anything?)

     

    If there is anything I can do for this server, for anyone of you, please contact.

     

     

     

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